Open AccessThe Decision-Making Process regarding Ovarian Tissue Cryopreservation in Girls with Turner Syndrome by Patients, Parents, and Healthcare Providers: A Mixed-Methods Study
Author(s) -
Sanne van der Coelen,
Janielle van der Velden,
Sapthami Nadesapillai,
Ron Peek,
D.D.M. Braat,
Myra Schleedoorn,
Kathrin Fleischer,
Anke Oerlemans
Publication year - 2022
Publication title -
hormone research in paediatrics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.816
H-Index - 89
eISSN - 1663-2826
pISSN - 1663-2818
DOI - 10.1159/000525374
Subject(s) - medicine , thematic analysis , family medicine , health professionals , health care , gynecology , offspring , turner syndrome , pediatrics , pregnancy , qualitative research , biology , genetics , social science , sociology , economics , economic growth
Ovarian tissue cryopreservation (OTC) has proven to be effective in other patient groups, but the effectiveness in girls with Turner syndrome (TS) is still unclear. Guidelines for counselling about OTC in TS are lacking. The aim of this study was to gain insight into the experiences of patients, parents, and healthcare providers with the decision-making process regarding OTC in girls with TS.