Open AccessHidradenitis Suppurativa Specialty Clinics in the USA
Author(s) -
Justine Seivright,
Alexander Thompson,
Iltefat Hamzavi,
Michelle A. Lowes,
Martina L. Porter,
Vivian Y. Shi,
Jennifer L. Hsiao
Publication year - 2021
Publication title -
skin appendage disorders
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.773
H-Index - 13
eISSN - 2296-9195
pISSN - 2296-9160
DOI - 10.1159/000516308
Subject(s) - hidradenitis suppurativa , specialty , demographics , family medicine , medicine , disease , gerontology , demography , sociology
Background: Hidradenitis suppurativa (HS) is a complex disease that is optimally managed with specialized care. Data on HS specialty clinics (HSSCs) are lacking. Methods: HSSCs in the USA were identified on the HS Foundation website and analyzed for geographic location and clinic director demographics. Results: We identified 29 HSSCs in 16 states, an increase from 22 in 2019. Thirty-four states currently lack a HSSC; the Mountain West and East South Central regions of the USA are particularly affected. Among HSSC directors, the majority (93.3%) are dermatologists, with slightly more women (53.3%) than men (46.7%). Most (86.7%) have an academic affiliation, and the majority (60%) graduated from residency <10 years ago. All directors are involved in research, and over half of HSSCs serve as HS clinical trial sites. Conclusions: The number of HSSCs in the USA has been growing, yet there remains a dearth in certain regions. Given that HS is a disease with high unmet need and a rapidly evolving therapeutic landscape, we encourage the establishment of more HSSCs to improve access to specialized care.