Open AccessDevelopment of HiSQOL: A Hidradenitis Suppurativa-Specific Quality of Life Instrument
Author(s) -
Linnea Thorlacius,
Solveig Esmann,
Iben Marie Miller,
Gabrielle R. Vinding,
Gregor B. E. Jemec
Publication year - 2019
Publication title -
skin appendage disorders
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.773
H-Index - 13
eISSN - 2296-9195
pISSN - 2296-9160
DOI - 10.1159/000496234
Subject(s) - hidradenitis suppurativa , quality of life (healthcare) , medicine , construct validity , clinical trial , focus group , physical therapy , disease , clinical psychology , psychometrics , pathology , nursing , marketing , business
Hidradenitis suppurativa (HS) is a chronic and painful skin disease. In addition, HS lesions may be associated with pus and odour, potentially leading to significant stigma and, consequently, greatly affected quality of life (QOL). QOL is a multidimensional construct, which can be measured in various ways. However, generic or dermatologic QOL measures may not capture changes in QOL particularly affected in HS. Accordingly, patients and experts included in the HIdradenitis SuppuraTiva cORe outcomes set International Collaboration (HISTORIC) agreed that future clinical HS trials should measure HS-specific QOL.