Consent Issues in Genetic Research: Views of Research Participants | Zendy

Deborah Goodman | Zendy; Catherine O. Johnson | Zendy; Lari Wenzel | Zendy; Deborah J. Bowen | Zendy; Celeste M. Condit | Zendy; Karen L. Edwards | Zendy

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Consent Issues in Genetic Research: Views of Research Participants

Author(s) -

Deborah Goodman,

Catherine O. Johnson,

Lari Wenzel,

Deborah J. Bowen,

Celeste M. Condit,

Karen L. Edwards

Publication year - 2016

Publication title -

public health genomics

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.701

H-Index - 51

eISSN - 1662-8063

pISSN - 1662-4246

DOI - 10.1159/000447346

Subject(s) - informed consent , family medicine , biobank , psychology , medicine , disease , population , alternative medicine , clinical psychology , pathology , bioinformatics , environmental health , biology

With the arrival of large-scale population-based genomic research studies, such as the Precision Medicine Initiative (PMI), the question of how to best consent participants is significant, and in an era of patient-centered research, few studies have evaluated participants' preferences about re-consent and broad consent. Using quantitative methods, this study evaluates participants' views regarding the acceptability of re-consent and broad consent in subjects from the Participant Issues Project.

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