Open AccessPatient ownership of primary biliary cholangitis long-term management
Author(s) -
Jessica Leighton,
Collette Thain,
Robert Mitchell-Thain,
Jessica Dyson,
David Jones
Publication year - 2020
Publication title -
frontline gastroenterology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.919
H-Index - 13
eISSN - 2041-4145
pISSN - 2041-4137
DOI - 10.1136/flgastro-2019-101324
Subject(s) - medicine , patient empowerment , disease , foundation (evidence) , empowerment , family medicine , primary care , archaeology , political science , law , history
Patient ownership of disease is vital in rare diseases like primary biliary cholangitis (PBC). This survey of UK members of the PBC foundation aimed to assess patients' perception of their disease management, focusing on key biomarkers and problematic symptoms.