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Patient versus proxy‐reported problematic activities of daily life in patients with COPD
Author(s) -
Nakken Nienke,
Janssen Daisy J.A.,
Bogaart Esther H.A.,
Vliet Monique,
Vries Geeuwke J.,
Bootsma Gerben P.,
Gronenschild Michiel H.M.,
Delbressine Jeannet M.L.,
Muris Jean W.M.,
Wouters Emiel F.M.,
Spruit Martijn A.
Publication year - 2017
Publication title -
respirology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.857
H-Index - 85
eISSN - 1440-1843
pISSN - 1323-7799
DOI - 10.1111/resp.12915
Subject(s) - activities of daily living , medicine , proxy (statistics) , copd , physical therapy , gerontology , machine learning , computer science
Background and objective Loved ones (proxies) of patients with COPD are confronted with the patients’ limitations in activities of daily living ( ADLs ). However, it remains unknown whether proxies are able to correctly estimate the problematic ADLs of the patient. Therefore, we aimed to investigate the level of agreement between patient‐reported and proxy‐reported problematic ADLs of the patient. Methods Stable outpatients with moderate to very severe COPD ( n = 194) and their resident proxies ( n = 194) were included in this cross‐sectional study. Patients’ problematic ADLs were assessed in the domains ‘self‐care’, ‘mobility’, ‘productivity’ and ‘leisure’ using the Canadian Occupational Performance Measure ( COPM ) in both patients and resident proxies. Furthermore, the perceived performance and satisfaction for important problematic ADLs were rated on a 10‐point scale. Results In total, 830 problematic ADLs were reported by patients, and 735 by proxies. Agreement in reporting problematic ADLs within a domain was poor (productivity and leisure; κ; = 0.20 and 0.16, respectively) to fair (self‐care and mobility; κ = 0.32 and 0.22, respectively). Similar performance and satisfaction scores, for equally reported problematic ADLs , were given by 24.0% and 17.6% of the pairs, respectively. Conclusion Proxies were often not able to identify the patients’ most important problematic ADLs . Moreover, when patient and proxy agreed about the presence of a specific problematic ADL , the perception of the performance and the satisfaction with that performance differed within most pairs. This emphasizes the importance of involving proxies, besides patients alone, in identifying patients’ problematic ADLs .