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Development and psychometric validation of a cystic fibrosis knowledge scale
Author(s) -
Balfour Louise,
Armstrong Michael,
Holly Crystal,
Gaudet Ena,
Aaron Shawn,
Tasca George,
Cameron William,
Pakhale Smita
Publication year - 2014
Publication title -
respirology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.857
H-Index - 85
eISSN - 1440-1843
pISSN - 1323-7799
DOI - 10.1111/resp.12379
Subject(s) - medicine , scale (ratio) , content validity , intervention (counseling) , face validity , construct validity , quality of life (healthcare) , reliability (semiconductor) , health care , cronbach's alpha , clarity , clinical psychology , internal consistency , family medicine , psychometrics , nursing , power (physics) , biochemistry , physics , chemistry , quantum mechanics , economics , economic growth
Background and objective Well‐developed and validated measures of cystic fibrosis ( CF ) knowledge are scarce. The purpose of the present study is to develop and validate a CF knowledge scale that is brief, easy to use, self‐administered and demonstrates clinical utility. Methods A comprehensive literature search generated a pool of scale items; an expert panel of CF team members reviewed and provided recommendations for item inclusion. A focus group of CF patients and family members ( n = 12) then reviewed the items for face validity and reading clarity. To evaluate the validity and reliability of the newly developed CF knowledge scale, it was administered to several different samples including CF patients ( n = 45), respirology patients ( n = 100), health‐care providers ( n = 74) and university student samples (psychology students, n = 71; medical students, n = 36). Results Internal consistency of the scale was high, with an alpha coefficient for the overall sample of .95 ( n = 326). The scale also demonstrated excellent construct validity. Conclusions This study is an important first step in a line of research that aims to develop and empirically validate a psycho‐educational adherence intervention for improving quality of life and treatment outcomes among adult CF patients. The CF knowledge scale has potential applications as a clinical teaching tool with patients and health‐care providers and could be used as an outcome measure in CF educational intervention studies aimed at optimizing CF treatment knowledge, adherence and quality of life among CF patients.