A ustralian  I diopathic  P ulmonary  F ibrosis  R egistry: Vital lessons from a national prospective collaborative project | Zendy

Moodley Yuben | Zendy; Goh Nicole | Zendy; Glaspole Ian | Zendy; Macansh Sacha | Zendy; Walters E Haydn | Zendy; Chapman Sally | Zendy; Hopkins Peter | Zendy; Reynolds Paul N | Zendy; Zappala Christopher | Zendy; Cooper Wendy | Zendy; Mahar Annabelle | Zendy; Ellis Samantha | Zendy; McCormack Samuel | Zendy; Darbishire William | Zendy; WoodBaker Richard | Zendy; Corte Tamera J. | Zendy

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A ustralian I diopathic P ulmonary F ibrosis R egistry: Vital lessons from a national prospective collaborative project

Author(s) -

Moodley Yuben,

Goh Nicole,

Glaspole Ian,

Macansh Sacha,

Walters E Haydn,

Chapman Sally,

Hopkins Peter,

Reynolds Paul N,

Zappala Christopher,

Cooper Wendy,

Mahar Annabelle,

Ellis Samantha,

McCormack Samuel,

Darbishire William,

WoodBaker Richard,

Corte Tamera J.

Publication year - 2014

Publication title -

respirology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.857

H-Index - 85

eISSN - 1440-1843

pISSN - 1323-7799

DOI - 10.1111/resp.12358

Subject(s) - medicine

There is little A ustralian epidemiologic data on idiopathic pulmonary fibrosis ( IPF ), a relatively uncommon but devastating disease. The vast geographic distances in A ustralia have been a major impediment for collaborative research into IPF . A collaborative national effort, the A ustralian IPF R egistry, has been formed, launched and is recruiting successfully ( n = 359, J anuary 2014). Our experience provides unique insights for others wishing to set up IPF registries and in time for a global IPF registry.

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