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Health‐related quality of life in parents of pediatric solid organ transplant recipients in Japan
Author(s) -
Kikuchi Ryota,
Ono Minoru,
Kinugawa Koichiro,
Endo Miyoko,
Mizuta Koichi,
Urahashi Taizen,
Ihara Yoshiyuki,
Yoshida Sachiyo,
Ito Shuichi,
Kamibeppu Kiyoko
Publication year - 2015
Publication title -
pediatric transplantation
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.457
H-Index - 69
eISSN - 1399-3046
pISSN - 1397-3142
DOI - 10.1111/petr.12435
Subject(s) - medicine , quality of life (healthcare) , psychological intervention , social support , health related quality of life , gerontology , clinical psychology , family medicine , psychiatry , nursing , psychology , disease , pathology , psychotherapist
Few studies have examined HRQOL in pediatric Tx recipients’ parents. This study investigated HRQOL in these parents and relationships between HRQOL and perceived burden of nurturing, family functioning, and social support. Self‐report anonymous questionnaires and a survey of medical records were completed between September and December 2013. The SF ‐36v2, which evaluates physical, psychological, and social health, was used to measure HRQOL . While values for physical and psychological health were higher than standard values (Cohen's d = 0.34 and 0.17, respectively), social health scores were lower ( d = 0.21). “Parental consultation unrelated to donation” (standardized partial regression coefficient: β = −0.52) was associated with physical health. “Family functioning” and “Commuting time between home and primary follow‐up hospital” (β = 0.57 and −0.31) were related to psychological health. “Total score for perceived burden of nurturing” (β = −0.31) was related to social health. Regarding parental HRQOL , while physical and psychological health was favorable, social health was impaired. In clinical practice, interventions targeting parents’ physical conditions and facilitation of community and family understanding and support to share recipients’ nurturing are important in improving parental HRQOL .