Premium
Assessment of quality of life in Turkish children with psoriasis and their caregivers
Author(s) -
Tekin Burak,
Gurel Mehmet Salih,
Topkarci Zeynep,
Topaloglu Demir Filiz,
Aytekin Sema,
Cebeci Kahraman Filiz,
Singer Ralfi,
Erdemir Vefa Asli,
Uzuncakmak Tugba Kevser,
Yasar Sirin,
Akdeniz Necmettin,
Altunay Ilknur Kivanc,
Kocaturk Emek,
Turkoglu Zafer,
Erdogan Bilgen
Publication year - 2018
Publication title -
pediatric dermatology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.542
H-Index - 73
eISSN - 1525-1470
pISSN - 0736-8046
DOI - 10.1111/pde.13585
Subject(s) - dermatology life quality index , medicine , quality of life (healthcare) , psychosocial , turkish , psoriasis , feeling , scale (ratio) , gerontology , pediatrics , psychiatry , dermatology , psychology , nursing , social psychology , linguistics , philosophy , physics , quantum mechanics
Background/Objectives The effect of pediatric psoriasis on quality of life has been demonstrated, but data regarding its influence on caregiver quality of life are scarce. The objective was to investigate how psoriasis affects quality of life of children and their caregivers. Methods This multicenter study included 129 children with psoriasis and their caregivers, who were family members accompanying patients to the clinic. Patient quality of life was measured using the Child Dermatology Life Quality Index. Caregiver quality of life was assessed using Dermatological Family Impact Scale, a 15‐item questionnaire validated for use in the Turkish language. Results Mean Child Dermatology Life Quality Index score was 7.6, indicating a moderate effect on patient quality of life. Symptoms and feelings were the most severely impaired domains of patient quality of life, and emotions was the most severely impaired domain of caregiver quality of life. Dermatological Family Impact Scale score was significantly correlated with Child Dermatology Life Quality Index (correlation coefficient [ r ] = .554, P < .001) and Psoriasis Area and Severity Index ( r = .350, P < .001). Caregivers of patients receiving systemic agents or phototherapy had relative impairment of multiple domains of quality of life compared to caregivers of patients receiving topical treatment only. Conclusion Psychosocial effect of pediatric psoriasis was shown to extend beyond the individual, highlighting the importance of addressing patient and caregiver quality of life concerns in an integrated approach.