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Engagement practices that join scientific methods with community wisdom: designing a patient‐centered, randomized control trial with a Pacific Islander community
Author(s) -
McElfish Pearl Anna,
Goulden Peter A,
Bursac Zoran,
Hudson Jonell,
Purvis Rachel S,
Kim Yeary Karen H,
Aitaoto Nia,
Kohler Peter O
Publication year - 2017
Publication title -
nursing inquiry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.66
H-Index - 49
eISSN - 1440-1800
pISSN - 1320-7881
DOI - 10.1111/nin.12141
Subject(s) - pacific islanders , community based participatory research , participatory action research , health equity , staffing , flexibility (engineering) , research design , community engagement , randomized controlled trial , medical education , nursing , psychology , sociology , public relations , medicine , political science , public health , ethnic group , management , social science , surgery , anthropology , economics
This article illustrates how a collaborative research process can successfully engage an underserved minority community to address health disparities. Pacific Islanders, including the Marshallese, are one of the fastest growing US populations. They face significant health disparities, including extremely high rates of type 2 diabetes. This article describes the engagement process of designing patient‐centered outcomes research with Marshallese stakeholders, highlighting the specific influences of their input on a randomized control trial to address diabetes. Over 18 months, an interdisciplinary research team used community‐based participatory principles to conduct patient‐engaged outcomes research that involved 31 stakeholders in all aspects of research design, from defining the research question to making decisions about budgets and staffing. This required academic researcher flexibility, but yielded a design linking scientific methodology with community wisdom.