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Clinical Characteristic Picture and Impact of Symptoms on Quality of Life of Interstitial Cystitis Patients in Taiwan
Author(s) -
LEE MingHuei,
LIN Alex TongLong,
KUO HannChorng,
CHEN YungFu
Publication year - 2014
Publication title -
luts: lower urinary tract symptoms
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.451
H-Index - 15
eISSN - 1757-5672
pISSN - 1757-5664
DOI - 10.1111/luts.12013
Subject(s) - interstitial cystitis , medicine , nocturia , quality of life (healthcare) , disease , physical therapy , urinary urgency , urinary system , alternative medicine , overactive bladder , nursing , pathology
Objective No clinical characteristic picture and impact of symptoms on quality of life ( QOL ) of interstitial cystitis ( IC ) patients in T aiwan had been reported. This paper is intended to provide preliminary descriptive results of IC research in T aiwan. Methods A total of 319 patients, based on National Institute of Arthritis, Diabetes, Digestive and Kidney Diseases ( NIDDK ) criteria, were enrolled in the study from F ebruary 2004 through M arch 2006. Evaluation data included baseline demographic information, patient and family medical history, dietary effects, pregnancy data, sexual relationships with symptoms, and impact of symptoms on quality of life. The main responsibility of the hospitals discussed was patient care and data collection. Taichung Hospital presents the results. Results The Interstitial Cystitis Database ( ICDB ) patients were predominantly female, that is, 86% of the total, with an average enrollment age of 46. The analysis of various symptoms indicates the following distribution: (i) 94% frequency; (ii) 80% pain; (iii) 53% nocturia; (iv) 43% urgency; and (v) 10% associated incontinence. Approximately 83% reported pain over the bladder while in full stage, and 74% reported pain relief after voiding. The predominant characteristic of pain was full sensation (54%) with the predominant position on low abdominal area (52%). Moreover, 80% reported sleeping disturbance due to disease, and 66% reported difficulty in performing daily work. Conclusions Interstitial cystitis patients in T aiwan have lower economic status but lower impact on QOL than Western patients. However, the sexual‐related pain and sleeping disorder were higher than previously thought and deserve our attention. Accordingly, this research provides a foundation for further investigations of baseline associations and longitudinal trends.