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Loss and rebuilding: A qualitative study of late diagnosis of cleft palate
Author(s) -
Tierney Stephanie,
Blackhurst Maria,
Scahill Rachael,
Callery Peter
Publication year - 2015
Publication title -
journal for specialists in pediatric nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.499
H-Index - 38
eISSN - 1744-6155
pISSN - 1539-0136
DOI - 10.1111/jspn.12125
Subject(s) - nature versus nurture , active listening , qualitative research , nursing , psychology , health professionals , medicine , health care , psychotherapist , sociology , social science , anthropology , economics , economic growth
Abstract Purpose To explore the experiences of parents whose child received a late diagnosis of cleft palate (>24 hr after birth). Design and Methods Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi‐structured interview. Framework analysis was applied to data. Results Loss and rebuilding was an overarching concept—from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child's long‐term condition. Practice implications Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing, and supporting.