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Parents' experiences, needs, and preferences in pediatric diabetes care: Suggestions for improvement of care and the possible role of the Internet. A qualitative study
Author(s) -
Boogerd Emiel A.,
Maasvan Schaaijk Nienke M.,
Noordam Cees,
Marks Hans J. G.,
Verhaak Chris M.
Publication year - 2015
Publication title -
journal for specialists in pediatric nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.499
H-Index - 38
eISSN - 1744-6155
pISSN - 1539-0136
DOI - 10.1111/jspn.12118
Subject(s) - the internet , focus group , peer support , psychology , health care , type 1 diabetes , health professionals , disease , nursing , medicine , qualitative research , family medicine , medical education , diabetes mellitus , business , social science , pathology , marketing , endocrinology , sociology , world wide web , computer science , economics , economic growth
Purpose To investigate the needs and preferences of parents of children with type 1 diabetes ( T1D ) concerning pediatric diabetes care and use of I nternet in care. Design and Methods Parents of 34 children, aged 2–12, with T1D participated in seven focus group interviews. Results Analysis revealed provision of tailored care, disease information, peer support, and accessibility of healthcare professionals as major needs in parents. I nternet could be used to satisfy these needs. Practical Implications According to parents, diabetes teams should focus on the impact of the disease, parents' experience, and the child's development, and provide online professional and peer support.