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Aging Together: Sibling Carers of Adults With Intellectual and Developmental Disabilities
Author(s) -
Coyle Caitlin E.,
Kramer John,
Mutchler Jan E.
Publication year - 2014
Publication title -
journal of policy and practice in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.592
H-Index - 30
eISSN - 1741-1130
pISSN - 1741-1122
DOI - 10.1111/jppi.12094
Subject(s) - sibling , perspective (graphical) , psychology , primary caregiver , gerontology , intellectual disability , developmental psychology , norm (philosophy) , primary care , qualitative research , medicine , family medicine , psychiatry , sociology , social science , computer science , political science , law , artificial intelligence
Abstract Family care provision is the norm for adults with intellectual and developmental disabilities ( I / DD ), even as they and their support networks grow older. As families age together, the role of primary carer frequently transitions from the parent to a sibling, as aging parents die or become too frail to provide continued support. The purpose of this paper is to explore the transition in care from the perspective of a sibling who has replaced parents as the primary carer for an individual aging with I / DD . Data are drawn from semi‐structured, in‐depth interviews with a sample of adults over age 40, living in the U nited S tates, and caring for a sibling with I / DD ( n = 15). Data were analyzed using a constant comparative qualitative approach. Results reveal themes impacting the adjustment to the role of primary carer, the extent to which aging transformed the content of care needs, the importance of planning, and the availability of supplementary support. Findings from this study underscore the need to develop long‐term services and supports as well as educational resources that accommodate this population of carers as they age together with their sibling with I / DD .