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Information sharing in neonatal intensive care: Parental perceptions and preferences
Author(s) -
Williams Logan,
I'Anson Julie,
Malarkey Moira,
Purcell Anevili,
Vries Nathalie,
McKinlay Christopher
Publication year - 2020
Publication title -
journal of paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.631
H-Index - 76
eISSN - 1440-1754
pISSN - 1034-4810
DOI - 10.1111/jpc.14842
Subject(s) - medicine , neonatal intensive care unit , information sharing , family centered care , intensive care , descriptive statistics , empowerment , the internet , nursing , perception , family medicine , health care , pediatrics , psychology , world wide web , neuroscience , computer science , intensive care medicine , political science , law , statistics , mathematics , economics , economic growth
Aim Information sharing is a key component of family‐centred care, which has traditionally occurred through patient information leaflets. Although patients' access to health information is rapidly changing with internet and mobile technologies, there are few data on parents' perception and preferences for information sharing. Our aim was to evaluate parents' perception of information sharing in neonatal care, to determine parents' preferred medium for health information and to identify priority content for inclusion in a smartphone application. Methods Parents at Kidz First Neonatal Care (KFNC) were eligible to take part in our survey, which comprised five sections: (i) demographics, (ii) information in neonatal care, (iii) printed information in neonatal care, (iv) parental views about development of a neonatal smartphone application and (v) general feedback. Parental satisfaction with information sharing in KFNC was assessed with a modified version of the Empowerment of Parents in the Intensive Care‐neonatology questionnaire. Descriptive and summary statistics were calculated, and free text data were analysed by content analysis. Results Forty‐one surveys were received, with 62% completed by mothers. Parents were supportive of electronic information, with 88% highly scoring the question ‘I would download and use a free neonatal care app’. However, parental views on the need to continue printed material if a neonatal care smartphone application was provided were mixed. Of those parents who provided free‐text recommendations, priority content included information about neonatal conditions, preparing for discharge and available supports. Conclusion Parents had positive perceptions of information sharing in neonatal care and were strongly supportive of the introduction of a neonatal phone application.