How is paediatric chronic fatigue syndrome/myalgic encephalomyelitis diagnosed and managed by paediatricians? An A ustralian Paediatric Research Network Study

Aim The diagnosis and management of paediatric chronic fatigue syndrome/myalgic encepnalomyelitis ( CFS / ME ) represent ongoing challenges for paediatricians. A better understanding of current approaches at a national level is important in informing where research and education could improve treatment outcomes. We aimed to examine current diagnosis and management practices for CFS / ME by Australian paediatricians. Method An online survey was sent to members of the A ustralian P aediatric R esearch N etwork. The primary outcomes of interest included diagnostic criteria used, medical investigations and management practices in paediatric CFS / ME . Results One hundred seventy‐eight (41%) of 430 eligible paediatricians responded, with 70 of the 178 (39%) reporting that they diagnose and manage CFS / ME as part of their practice. Medical investigations used for diagnosis were variable. Conditions that more than half of the paediatricians reported as commonly co‐occurring (i.e. present in >50% of cases) included somatisation disorders, anxiety, depression and fibromyalgia. There was wide variation in behavioural and pharmacological management strategies but most paediatricians commonly engaged a school teacher, physiotherapist and/or psychologist as part of their management. Conclusion The diagnostic and management practices of paediatricians for CFS / ME within A ustralia vary widely. This likely reflects a paucity of paediatric‐specific guidelines, together with limited evidence to guide best practice and limited training in this area. There is a need for guidance and education for the diagnosis and management of paediatric CFS / ME in A ustralia.