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Quality of life and anxiety in T urkish patients with anorectal malformation
Author(s) -
Akin Sari Burcu,
Demiroğullari Billur,
Ozen Onur,
İseri Elvan,
Kale Nuri,
Başaklar Can
Publication year - 2014
Publication title -
journal of paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.631
H-Index - 76
eISSN - 1440-1754
pISSN - 1034-4810
DOI - 10.1111/jpc.12406
Subject(s) - medicine , anxiety , quality of life (healthcare) , clinical psychology , pediatrics , psychiatry , nursing
Aim The aim of this study was to investigate quality of life ( QoL ) and anxiety level in Turkish children with anorectal malformation as well as the anxiety level of their mothers and the support group effects on anxiety. Methods A total of 87 children and their parents were included. They were grouped according to children's age: <8 years (group 1), 8–12 years (group 2) and >12 years (group 3). The anxiety of all mothers and of children in group 3 was assessed by S pielberger's S tate– T rait A nxiety I ndex‐2. The QoL of children in groups 2 and 3 was evaluated with the P ed‐ QL 4.0 test by self‐report and proxy report. The QoL results in groups 2 and 3 were compared with age‐matched controls. Results Mothers in groups 1 and 3 were more anxious than were those in group 2. Adolescents in group 3 had poorer QoL compared with controls by self‐ and proxy reports. A significant difference was observed in QoL between the children who did and those who did not soil. The anxiety level was significantly lower in parents who attended more than one meeting. Conclusions High anxiety and poor QoL levels in adolescence may have been related to the growing importance of body image. The higher anxiety levels of mothers in group 1 could be explained by an encounter with a baby who was different from the imagined baby and the newness of illness. QoL may have been perceived as being worse than what it was for psychological reasons.