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The lived experience of adults with ulcerative colitis
Author(s) -
Sammut Jacqueline,
Scerri Josianne,
Xuereb Rita Borg
Publication year - 2015
Publication title -
journal of clinical nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.94
H-Index - 102
eISSN - 1365-2702
pISSN - 0962-1067
DOI - 10.1111/jocn.12892
Subject(s) - ulcerative colitis , psychosocial , interpretative phenomenological analysis , qualitative research , medicine , exploratory research , inflammatory bowel disease , disease , nonprobability sampling , health care , psychology , psychiatry , sociology , anthropology , economic growth , social science , population , environmental health , economics
Aims and objectives The purpose of this study was to explore the experiences of adults living with ulcerative colitis. Background Research to date has focused on the impact of inflammatory bowel disease, by analysing the responses of persons with ulcerative colitis and Crohn's disease collectively. This article addresses the dearth in literature by exploring the experiences of adults living with ulcerative colitis. Design An exploratory qualitative phenomenological design was used. Method Semi‐structured interviews were conducted with a purposive sample of 10 adults with ulcerative colitis. Verbatim transcripts were analysed using Interpretative Phenomenological Analysis. Results Three super‐ordinate themes emerged from the analysis: ‘living with physical discomfort’, ‘emotional turmoil in living the experience’ and ‘social interactions’. Conclusion The participants described a fundamental change in their lifestyle, as a result of physical discomfort and emotional turmoil. Misconceptions held regarding the causes of their disease, further compounded their negative emotional experience. Relevance to clinical practice It is of importance that health care professionals understand and explore the unique perspectives of individuals with ulcerative colitis. These perspectives relate to both physical and psychosocial issues. The needs and concerns of persons with ulcerative colitis can then guide the formulation and development of an individualised care plan.