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Relational Decision‐Making in the Context of Life‐Limiting Fetal Anomalies: Two Cases of Anencephaly Diagnosis
Author(s) -
Zielinski Ruth E.,
Roosevelt Lee,
Nelson Kathryn,
Vargas Brittaney,
Thomas Jonalea W.
Publication year - 2020
Publication title -
journal of midwifery and women's health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.543
H-Index - 62
eISSN - 1542-2011
pISSN - 1526-9523
DOI - 10.1111/jmwh.13161
Subject(s) - anencephaly , limiting , context (archaeology) , medicine , psychology , intensive care medicine , pediatrics , pregnancy , fetus , engineering , biology , mechanical engineering , paleontology , genetics
Life‐limiting fetal diagnoses such as anencephaly require families to make decisions in which no options offered will lead to the desired outcome of a healthy newborn. Although informed choice and shared decision‐making are important aspects of ethics regarding care choices, they have limitations. In this article, 2 cases of anencephaly diagnosis are presented, and a relational decision‐making model of care is proposed as an alternative for aiding pregnant people and their families in making challenging choices in the context of perinatal care.