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Pediatric Chronic Illness Management: A Qualitative Dyadic Analysis of Adolescent Patient and Parent Illness Narratives
Author(s) -
WilliamsReade Jacqueline M.,
Tapanes Daniel,
Distelberg Brian J.,
Montgomery Susanne
Publication year - 2020
Publication title -
journal of marital and family therapy
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.868
H-Index - 68
eISSN - 1752-0606
pISSN - 0194-472X
DOI - 10.1111/jmft.12377
Subject(s) - narrative , psychology , qualitative research , qualitative analysis , illness behavior , clinical psychology , psychiatry , psychotherapist , developmental psychology , medicine , sociology , social science , philosophy , linguistics
In pediatric chronic illness, little is known about the relational interactions between adolescent patients, parents, and illnesses and how they influence self‐management of illness. We conducted interviews with 32 individuals (16 dyads) representing adolescents diagnosed with a chronic illness and their primary parent who had been referred to a psychosocial treatment program for challenges with illness management. Interviews were conducted individually and analyzed dyadically using grounded theory to better understand the relational processes that may be contributing to illness management difficulties. Results include a theory of patient–parent illness responses and how parental illness meanings play a role in adolescent self‐management. Results can be used to better understand and treat family relational patterns that may be influencing pediatric illness management challenges.