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“We will never be normal”: The Experience of Discovering a Partner Has Autism Spectrum Disorder
Author(s) -
Lewis Laura F.
Publication year - 2017
Publication title -
journal of marital and family therapy
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.868
H-Index - 68
eISSN - 1752-0606
pISSN - 0194-472X
DOI - 10.1111/jmft.12231
Subject(s) - autism spectrum disorder , psychology , distress , autism , statement (logic) , developmental psychology , social psychology , psychotherapist , political science , law
Online forums and lay literature suggest that partners of individuals with Autism Spectrum Disorder ( ASD ) experience depression, distress, and trauma in their everyday lives, exacerbated during the time surrounding diagnosis. In this content analysis, 29 participants were provided with an online open‐ended statement asking them to describe in writing their experiences of discovering that their partners had ASD during their relationships. Six themes emerged, including: facing unique challenges within relationships; insisting partners seek diagnosis; initial shock and relief; losing hope for normalcy; making accommodations within relationships; and wishing for professional support. Marriage and family therapists should help couples minimize blaming and promote self‐awareness, appropriate relationship expectations, and mutual understanding. Future research should explore the overall experience of neuro‐mixed relationships for both partners.