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A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research
Author(s) -
Conroy N. E.,
McDonald K. E.,
Olick R. S.
Publication year - 2021
Publication title -
journal of intellectual disability research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.941
H-Index - 104
eISSN - 1365-2788
pISSN - 0964-2633
DOI - 10.1111/jir.12877
Subject(s) - intellectual disability , psychology , gerontology , developmental psychology , clinical psychology , psychiatry , medicine
Background Historically, people with intellectual disability have been exploited in and excluded from scientific research. To facilitate greater representation of adults with intellectual disability as research respondents, we sought to understand their interest in research participation and factors affecting their willingness to volunteer to participate, such as the core value of trust. Methods Our survey measured attitudes of adults with intellectual disability towards research in general and research specifically involving adults with intellectual disability as respondents, as well as their prior research experiences, trust of researchers and interest in future research participation. Results Participants reported positive attitudes towards research and strong interest in future participation opportunities, and trust of researchers was positively correlated to both. The belief that ‘research about adults with intellectual disability is very important’ also predicted participants' interest in future research participation. Conclusions Our findings indicate that adults with intellectual disability support the direct involvement of adults with intellectual disability in research as respondents. Trustworthy rapport with researchers and positive views about research foster greater inclusion of this population.

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