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Individual, parent and social–environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder
Author(s) -
Burke M.,
Heller T.
Publication year - 2016
Publication title -
journal of intellectual disability research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.941
H-Index - 104
eISSN - 1365-2788
pISSN - 0964-2633
DOI - 10.1111/jir.12271
Subject(s) - autism spectrum disorder , psychology , autism , clinical psychology , young adult , developmental psychology , psychiatry
Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well‐being. Thus, it is crucial to identify the individual, parent and social–environmental correlates of caregiving experiences among parents of adults with ASD. Method For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self‐efficacy and burden. Results Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self‐efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self‐efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions Implications for policymakers, practitioners and future research are discussed.