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Racial and Ethnic Differences in Knowledge About One's Dementia Status
Author(s) -
Lin PeiJung,
Emerson Joanna,
Faul Jessica D.,
Cohen Joshua T.,
Neumann Peter J.,
Fillit Howard M.,
Daly Allan T.,
Margaretos Nikoletta,
Freund Karen M.
Publication year - 2020
Publication title -
journal of the american geriatrics society
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.992
H-Index - 232
eISSN - 1532-5415
pISSN - 0002-8614
DOI - 10.1111/jgs.16442
Subject(s) - medicine , dementia , ethnic group , odds ratio , confidence interval , gerontology , health and retirement study , activities of daily living , odds , demography , cohort study , comorbidity , prospective cohort study , logistic regression , physical therapy , psychiatry , disease , sociology , anthropology
OBJECTIVES To examine racial and ethnic differences in knowledge about oneʼs dementia status. DESIGN Prospective cohort study. SETTING The 2000 to 2014 Health and Retirement Study. PARTICIPANTS Our sample included 8,686 person‐wave observations representing 4,065 unique survey participants, aged 70 years or older, with dementia, as identified by a well‐validated statistical prediction model based on individual demographic and clinical characteristics. MEASUREMENTS Primary outcome measure was knowledge of oneʼs dementia status, as reported in the survey. Patient characteristics included race/ethnicity, age, sex, survey year, cognition, function, comorbidity, and whether living in a nursing home. RESULTS Among subjects identified as having dementia by the prediction model, 43.5% to 50.2%, depending on the survey year, reported that they were informed of the dementia status by their physician. This proportion was lower among Hispanics (25.9%‐42.2%) and non‐Hispanic blacks (31.4%‐50.5%) than among non‐Hispanic whites (47.7%‐52.9%). Our fully adjusted regression model indicated lower dementia awareness among non‐Hispanic blacks (odds ratio [OR] = 0.74; 95% confidence interval [CI] = 0.58‐0.94) and Hispanics (OR = 0.60; 95% CI = 0.43‐0.85), compared to non‐Hispanic whites. Having more instrumental activity of daily living limitations (OR = 1.65; 95% CI = 1.56‐1.75) and living in a nursing home (OR = 2.78; 95% CI = 2.32‐3.32) were associated with increased odds of subjects reporting being told about dementia by a physician. CONCLUSION Less than half of individuals with dementia reported being told by a physician about the condition. A higher proportion of non‐Hispanic blacks and Hispanics with dementia may be unaware of their condition, despite higher dementia prevalence in these groups, compared to non‐Hispanic whites. Dementia outreach programs should target diverse communities with disproportionately high disease prevalence and low awareness. J Am Geriatr Soc 68:1763‐1770, 2020.