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“A waste of time without patients”: The views of patient representatives attending a workshop in evidence‐based practice
Author(s) -
AustvollDahlgren Astrid,
Johansen Marit
Publication year - 2018
Publication title -
journal of evidence‐based medicine
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.885
H-Index - 22
ISSN - 1756-5391
DOI - 10.1111/jebm.12303
Subject(s) - mandate , relevance (law) , hierarchy , evidence based practice , medical education , psychology , medicine , political science , alternative medicine , pathology , law
Background Shared decision‐making is a central element of evidence‐based practice (EBP). Training in EBP has traditionally focused on providers, but there is an increasing interest in developing such educational resources for patients. The aim of this study is to explore the views of patient representatives attending a workshop in EBP. Methods We conducted three focus groups with participants attending EBP workshops in 2013, 2014, and 2015. We used the framework method for content analysis. We reviewed the transcribed interviews independently and assigned initial codes and final categories to the transcriptions. We created an analytical framework and a flow diagram to visualize the category hierarchy and the relationship between categories. Results We identified two main themes; “How to facilitate training in evidence‐based practice for patients,” and “Outputs of training in evidence based practice for patients.” Training in EBP for patient representatives “should reflect the principles EBP,” and include interaction with both health professionals and other representatives. The educational needs of representatives are much the same as those of health professionals, and the training should therefore be “on a par with professionals.” The relevance of such training may depend on the representatives’ mandate, and costs might be an important barrier. Important outputs of such training include “becoming a knowledge manager,” “enabling participation and informed decisions” and “re‐defining the patient representatives' role.” Conclusions The findings of this study suggest that training in EBP is attractive to patient representatives with outputs perceived important. Organizers should consider the principles of EBP when planning such training.

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