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Time trends in autism diagnosis over 20 years: a UK population‐based cohort study
Author(s) -
Russell Ginny,
Stapley Sal,
NewloveDelgado Tamsin,
Salmon Andrew,
White Rhianna,
Warren Fiona,
Pearson Anita,
Ford Tamsin
Publication year - 2022
Publication title -
journal of child psychology and psychiatry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 3.652
H-Index - 211
eISSN - 1469-7610
pISSN - 0021-9630
DOI - 10.1111/jcpp.13505
Subject(s) - autism , incidence (geometry) , cohort , population , pediatrics , medical diagnosis , autism spectrum disorder , medicine , cohort study , demography , psychology , psychiatry , physics , environmental health , pathology , sociology , optics
Background Autism spectrum disorder is a diagnosis that is increasingly applied; however, previous studies have conflicting findings whether rates of diagnosis rates continue to grow in the UK. This study tested whether the proportion of people receiving a new autism diagnosis has been increasing over a twenty‐year period, both overall and by subgroups. Method Population‐based study utilizing the Clinical Practice Research Datalink (CPRD) primary care database, which contains patients registered with practices contributing data to the CPRD between 1998 and 2018 ( N = 6,786,212 in 1998 to N = 9,594,598 in 2018). 65,665 patients had a diagnosis of autism recorded in 2018. Time trend of new (incident) cases of autism diagnosis was plotted for all, and stratified by gender, diagnostic subtypes, and developmental stage: infancy and preschool, 0–5 years old; childhood, 6–11 years old; adolescence, 12–19 years old; adults, over 19 years old. Results There was a 787%, exponential increase in recorded incidence of autism diagnoses between 1998 and 2018; R 2 = 0.98, exponentiated coefficient = 1.07, 95% CI [1.06, 1.08], p < .001. The increase in diagnoses was greater for females than males (exponentiated interaction coefficient = 1.02, 95% CI [1.01, 1.03], p < .001) and moderated by age band, with the greatest rises in diagnostic incidence among adults (exponentiated interaction coefficient = 1.06, 95% CI [1.04, 1.07], p < .001). Conclusions Increases could be due to growth in prevalence or, more likely, increased reporting and application of diagnosis. Rising diagnosis among adults, females and higher functioning individuals suggest augmented recognition underpins these changes.