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Stress and quality of life in parents of children with phenylketonuria
Author(s) -
Irannejad Fatemeh,
Dehghan Mahlagha,
Mehdipour Rabori Roghayeh
Publication year - 2018
Publication title -
journal of child and adolescent psychiatric nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.331
H-Index - 35
eISSN - 1744-6171
pISSN - 1073-6077
DOI - 10.1111/jcap.12207
Subject(s) - quality of life (healthcare) , medicine , affect (linguistics) , perceived stress scale , phenylalanine hydroxylase , pediatrics , stress (linguistics) , scale (ratio) , disease , clinical psychology , gerontology , phenylalanine , psychology , nursing , linguistics , philosophy , biochemistry , chemistry , communication , amino acid , physics , quantum mechanics
Phenylketonuria is a hereditary disease caused by the lack or deficiency of phenylalanine hydroxylase enzyme activity. Parents of children with phenylketonuria undergo significant stress during their childcare years. They are also responsible for controlling their children's dietary treatment and this may affect their quality of life. The purpose of this study was to investigate the relationship between stress and quality of life in parents of children with phenylketonuria.