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Development of a questionnaire to assess the quality of service trajectories in autism spectrum disorder from families' perspective
Author(s) -
Rivard Mélina,
Mello Catherine,
Mercier Céline,
Lefebvre Christine,
Millau Marie,
Morin Marjorie,
Morin Diane,
Abouzeid Nadia,
Chatenoud Céline
Publication year - 2020
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12777
Subject(s) - perspective (graphical) , autism spectrum disorder , psychology , quality (philosophy) , discriminant validity , autism , service (business) , internal consistency , clinical psychology , applied psychology , developmental psychology , psychometrics , computer science , artificial intelligence , philosophy , economy , epistemology , economics
Background ETAP‐1 was created to evaluate the quality of services trajectory from families’ perspective. The items of ETAP‐1 were developed from previous studies on integrated care, existing quality assessments, and consultations with families and experts in evaluation and in autism spectrum disorder (ASD). Method The questionnaire was completed by 200 parents of children aged 5 and under who were recently diagnosed with ASD or intellectual disability. Of these, 183 received diagnostic evaluation through a clinic specialized in ASD; the other 17 underwent diagnostic evaluation in hospital settings. Results Factor analysis supported the a priori dimensions of quality and distinctions between experiences before and during diagnostic evaluation. The instrument had high internal consistency, convergent and discriminant validity with other measures and was sensitive to differences in service delivery models. Discussion ETAP‐1 is useful in organizing information on families’ experiences throughout their services trajectories and according to a dynamic perspective.