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Exploring health and wellness among Native American adults with intellectual and/or developmental disabilities and their family caregivers
Author(s) -
Williamson Heather J.,
Brennan Alissa C.,
Tress Samantha F.,
Joseph Darold H.,
Baldwin Julie A.
Publication year - 2020
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12664
Subject(s) - photovoice , health equity , ethnic group , psychology , gerontology , family caregivers , native american , community based participatory research , participatory action research , medicine , nursing , public health , political science , sociology , anthropology , economics , economic growth , ethnology , law
Background Adults with intellectual and/or developmental disabilities (IDD) experience health inequities, and those who also identify as a member of an ethnic minority group face additional health inequities. In the United States, a majority of adults with IDD continue to be supported by family caregivers making their health equity also important. The purpose of this study was to explore how Native American adults with IDD and their family caregivers experience health and wellness. Method This community‐engaged research was guided by a Community Advisory Board (CAB) with study participants completing a Photovoice project. Results Participants identified individual, family and community level influences on health and wellness including the importance of participation in meaningful activities and connection to culture. Conclusions In order to address health inequities, more research is needed to understand health and wellness from the unique perspectives of individuals with IDD and those from racial and ethnic minority groups.