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“Living the life I want”: A framework for planning engagement with people with intellectual disability and complex support needs
Author(s) -
Dew Angela,
Collings Susan,
Dillon Savage Isabella,
Gentle Emma,
Dowse Leanne
Publication year - 2019
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12538
Subject(s) - autonomy , intellectual disability , centrality , agency (philosophy) , sense of agency , psychology , self determination , process (computing) , psychology of self , social psychology , applied psychology , sociology , computer science , social science , mathematics , combinatorics , psychiatry , political science , law , operating system
Background Self‐determination involves autonomy, agency, choice and control. This study investigated how these aspects of self‐determination relate to engaging people with intellectual disability and complex support needs in setting goals and making plans. Method Body mapping was used to understand the planning experiences of 30 adults with intellectual disability and complex support needs. Each participant created two body maps using a guided group‐based process. Visual and text data were thematically analysed and a framework for planning engagement developed. Results The framework identifies the centrality of having a well‐developed sense of self which includes insight, motivation and agency, and which is shaped by contextual barriers and facilitators and influenced by helpful and unhelpful support. Conclusions A well‐developed sense of self and ability to harness resources and people is fundamental to the ability of individuals with intellectual disability and complex support needs articulating goals, identifying aspirations, and attaining valued outcomes.