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Comparing differences in support needs as perceived by parents of adult offspring with down syndrome, autism spectrum disorder and cerebral palsy
Author(s) -
Lee Chung eun,
Burke Meghan M.,
Arnold Catherine K.,
Owen Aleksa
Publication year - 2019
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12521
Subject(s) - autism spectrum disorder , offspring , cerebral palsy , psychology , autism , intellectual disability , special needs , developmental psychology , clinical psychology , down syndrome , psychiatry , pregnancy , biology , genetics
Background Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome ( DS ), autism spectrum disorder ( ASD ) and cerebral palsy ( CP ) regarding support needs of their offspring with intellectual and developmental disabilities ( IDD ) and their families. Method Data were collected via a national survey in the United States with 189 parents of adults with IDD . Results Across the quantitative and qualitative analyses, parents of adults with DS (versus CP and ASD ) reported significantly greater recreational, natural supports, more formal services and less future planning barriers. Conclusion The results indicate that the DS advantage may persist in adulthood regarding support needs. More research is needed to understand different types of support needs.