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Family perceptions of the impacts of a home and community based services autism waiver: Making family life possible
Author(s) -
Eskow Karen Goldrich,
Summers Jean Ann
Publication year - 2019
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12518
Subject(s) - waiver , medicaid , autism , psychology , qualitative research , quality (philosophy) , perception , quality of life (healthcare) , identification (biology) , medicine , nursing , psychiatry , political science , sociology , health care , social science , philosophy , epistemology , neuroscience , law , botany , biology
Background An important mechanism that provides support and services for families with a child/youth with autism spectrum disorder is the home‐ and community‐based services ( HCBS ) Waiver authorized by Section 1915(c) of the Social Security Act or Medicaid. Methods This study used qualitative research methods to explore parent perspectives about the impact of HCBS Waiver services on the child/youth with autism and their family. In‐depth interviews focused on aspects of the programme they valued, identification of barriers and general issues they experienced. Results Results of the qualitative study indicated that improved outcomes could be explained by providers of services who were well‐trained, flexible and allowed parents’ opportunities for choice regarding provision of services to meet child/youth and family needs. Conclusion The findings of this study provide guideposts for further research about factors that contribute to satisfaction of families receiving waiver services for quality of life and child progress.