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The POMONA‐ESP project methodology: Collecting data on health indicators for people with intellectual developmental disorders
Author(s) -
Folch Annabel,
MartínezLeal Rafael,
Vicens Paloma,
Irazábal Marcia,
Muñoz Silvia,
SalvadorCarulla Luis,
Rovira Lluís,
Orejuela Carmen,
Cortés Maria José
Publication year - 2019
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12497
Subject(s) - intellectual disability , sample (material) , health care , observational study , psychology , gerontology , medicine , psychiatry , economic growth , pathology , chemistry , chromatography , economics
Background People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA‐ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders. Methods The POMONA‐ESP project is an observational cross‐sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services. Results and conclusions The results of the POMONA‐ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.