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Comparisons of self and proxy report on health‐related factors in people with intellectual disability
Author(s) -
Scott Haleigh M.,
Havercamp Susan M.
Publication year - 2018
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12452
Subject(s) - feeling , intellectual disability , proxy (statistics) , psychology , perspective (graphical) , developmental psychology , clinical psychology , gerontology , social psychology , psychiatry , medicine , machine learning , artificial intelligence , computer science
Background The intellectual disability field has learned about the lives of people with intellectual disabilities ( ID ), largely from the perspective of their family and caregivers. Information from caregivers has been critical to scientific advancement, especially when caregivers are engaged on behalf of individuals with significant language impairment. On the other hand, the perspective of individuals with ID themselves is critical for internal subjective content such as thoughts and feelings. Methods Participants were 90 adults with ID and a proxy of their choosing. Results Overall, self and caregiver report were significantly related for subjective health but varied for physical activity, social support and stress. Conclusions These findings add to the growing literature establishing the importance of considering the self‐report of adults with ID , particularity when the subject matter focuses on internal thoughts or feelings. Clinical considerations for the use of self and proxy report are discussed.