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Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities
Author(s) -
TuffreyWijne Irene,
Rose Tracey,
Grant Robert,
Wijne Astrid
Publication year - 2017
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12382
Subject(s) - training (meteorology) , intellectual disability , session (web analytics) , psychology , medical education , work (physics) , challenging behaviour , resource (disambiguation) , nursing , medicine , psychiatry , business , mechanical engineering , computer network , physics , meteorology , advertising , computer science , engineering
Background Many people with intellectual disabilities are affected by death, yet conversations about death are often avoided by staff working with them. This study aimed to assess staff training needs and to develop, trial and evaluate a training course on communicating about death and dying. Method (i) Semi‐structured interviews with 20 staff in residential/supported living services to establish training needs; (ii) three‐one‐day courses were attended by 114 staff and evaluated through questionnaires. The course consisted of World Café sessions, presentations and feedback by people with intellectual disabilities, and an expert teaching session. Results Staff fear, cultural influences and inexperience with death‐related conversations were major communication barriers. Evaluation of the course was overwhelmingly positive. Conclusions Intellectual disabilities services must have clear staff training strategies around death, dying and communication. More work is needed to assess the resource implications and impact on practice of different training methods and other support strategies.