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Agency, social and healthcare supports for adults with intellectual disability at the end of life in out‐of‐home, non‐institutional community residences in Western nations: A literature review
Author(s) -
Moro Teresa T.,
Savage Teresa A.,
Gehlert Sarah
Publication year - 2017
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12374
Subject(s) - agency (philosophy) , intellectual disability , quality of life (healthcare) , end of life care , health care , gerontology , palliative care , public relations , nursing , psychology , medicine , sociology , political science , psychiatry , social science , law
Background The nature and quality of end‐of‐life care received by adults with intellectual disabilities in out‐of‐home, non‐institutional community agency residences in Western nations is not well understood. Method A range of databases and search engines were used to locate conceptual, clinical and research articles from relevant peer‐reviewed journals. Results The present authors present a literature review of the agency, social and healthcare supports that impact end‐of‐life care for adults with intellectual disabilities. More information is needed about where people with intellectual disabilities are living at the very end of life and where they die. Conclusions The support needs for adults with intellectual disabilities will change over time, particularly at the end of life. There are some areas, such as removing barriers to providing services, staff training, partnerships between agencies and palliative care providers, and advocacy, where further research may help to improve the end‐of‐life care for adults with intellectual disabilities.