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Perceptions of Effective Support Services to Families with Disabled Children whose Behaviour is Severely Challenging: A Multi‐Informant Study
Author(s) -
McConkey Roy,
Gent Clare,
Scowcroft Emma
Publication year - 2013
Publication title -
journal of applied research in intellectual disabilities
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.056
H-Index - 63
eISSN - 1468-3148
pISSN - 1360-2322
DOI - 10.1111/jar.12019
Subject(s) - service (business) , negotiation , psychology , perception , nursing , social welfare , service delivery framework , challenging behaviour , respite care , medicine , business , developmental psychology , marketing , learning disability , political science , neuroscience , law
Background Specialist short break services aim to provide enhanced support to family carers as a means of preventing children whose behaviours severely challenge from being placed in full‐time residential care. To date, there is limited evidence as to the functioning and effectiveness of such services. Methods In all, 17 children were selected at random from the 123 who were currently receiving services or had done so in the past 2 years from three specialist short break and community support services. For each child, interviews were conducted with a parent, the child's key worker within the service and the professional (mostly social workers) who had referred families to the services. Results Five core themes captured the informants’ common experiences: the complexities underlying the provision of services; the negotiations required to implement, maintain and adjust service packages; the relationships forged by the services; and the benefits they brought to children and families plus concerns about the future also featured. Conclusions Specialist short break services can make a vital contribution to retaining children within their families, but under some important conditions which this study has identified: notably, the management of complexity, the formation of trusted relationships and creation of tangible benefits for the family and for the child.