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医护人员、青少年和成年患者对镰状细胞疾病的认知:同时作为医疗护理的障碍和促进因素
Author(s) -
Hoegy Delphine,
Guilloux Ronald,
Bleyzac Nathalie,
GauthierVasserot Alexandra,
Cannas Giovanna,
Bertrand Yves,
Hot Arnaud,
Dussart Claude,
JanolyDumenil Audrey
Publication year - 2020
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.14456
Subject(s) - medicine , disease , psychological intervention , social support , health care , content analysis , coping (psychology) , qualitative research , perception , focus group , young adult , family medicine , nursing , gerontology , psychology , clinical psychology , social science , business , pathology , marketing , neuroscience , sociology , economics , psychotherapist , economic growth
Aims To provide an understanding of medical care adherence factors as reported by caregivers, adolescent, and adult patients with sickle cell disease and to analyse those concerns to identify barriers and facilitators about medical care adherence. Three topics influenced medical care adherence: the disease itself, therapeutics, and the healthcare system. This study will focus on the first topic. Design Qualitative explorative study, using semi‐structured and life‐experience interviews and manual inductive content analysis. Methods From December 2016 – March 2017, one semi‐structured interview was conducted by a researcher with each of the 15 adolescent patients, 10 adult patients, and 19 caregivers in a French public hospital. Interviews were audio‐taped and transcribed before a content analysis. Perceptions were classified into barriers and facilitators of medical care adherence. Results This article presents disease perceptions of caregivers and patients (adolescents and adults): daily management and social representations. These perceptions differ among parents, adolescent patients, and adult patients. However, all report important disease‐related “limitations” in their lives. The objective for adults (parents and patients) is to “live with the disease” and to achieve this, they find coping resources. Two major resources expressed by adults emerged: social resources (support from friends, patients’ association, and social visibility) and disease knowledge (theoretical and derived from experience). This is not the case of adolescents for whom social normality was the main concern. Conclusion Care management adherence is partly based on coping with the disease. Given the lower number of facilitators expressed by adolescents, it is essential to propose interventions in this population. It will help them cope with the disease and, consequently, optimize care management adherence. Impact Showing differences among caregivers, adult, and adolescent patient perceptions, this study impact future care practices. It revealed needs of intervention for adolescents.