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成人2型糖尿病患者的家庭功能,家庭参与和自我管理经验:一项主题分析
Author(s) -
Bennich Birgitte B.,
Munch Lene,
Overgaard Dorthe,
Konradsen Hanne,
Knop Filip K.,
Røder Michael,
Vilsbøll Tina,
Egerod Ingrid
Publication year - 2020
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.14256
Subject(s) - glycemic , thematic analysis , disease , diabetes management , medicine , qualitative research , disease management , diabetes mellitus , group cohesiveness , type 2 diabetes , psychology , family medicine , gerontology , social psychology , pathology , social science , sociology , parkinson's disease , endocrinology
Aim To describe the patient's experience of family function and its importance in diabetes‐related self‐management. Background Many patients fail to reach the targeted glycemic level due to low self‐management adherence. Knowledge is needed regarding the impact of family function on diabetes self‐management. Design A qualitative descriptive design. Methods A purposive sample of 20 patients with type 2 diabetes. Data were collected in March‐June 2017 via audio‐recorded semi‐structured interviews, field notes and Eco‐maps. Analysed using thematic framework matrix and thematic analysis. Results Four themes were identified: (1) Downplaying disease. The disease was trivialized creating a barrier to family involvement; (2) Second guessing. When diabetes was not discussed, patient and family made their own assumptions; (3) Going it alone. The participants preferred sole disease responsibility to maintain usual family life; (4) No regrets. The participants managed their disease with medications only to maintain family cohesion and ‘the good life’. Conclusion The participants in our study downplayed the consequences of type 2 diabetes and chose to control their disease medically rather than by lifestyle changes. They renounced family involvement to maintain their lifestyle and promote family cohesion. Impact During clinical check‐ups, patients should be encouraged to involve their family in lifestyle changes. Healthcare professionals need to recognize illness‐ and treatment beliefs and the impact of family function in disease management.