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住家痴呆患者照顾者的支持团体:集中民族志研究。
Author(s) -
Lauritzen Jette,
Bjerrum Merete B.,
Pedersen Preben U.,
Sørensen Erik E.
Publication year - 2019
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.14151
Subject(s) - feeling , focus group , peer support , dementia , dignity , psychology , participant observation , support group , nursing , medicine , social psychology , psychiatry , marketing , sociology , political science , anthropology , law , business , pathology , disease
Aims To explore and understand carer participation in support groups when caring for a person with dementia who lives at home. Design Focused ethnographic design. Methods Participant observations and semi‐structured interviews were conducted from January–December 2015. The data were collected from four support groups in the Danish primary healthcare system. Interviews were conducted with 25 carers. An inductive content analysis of the data was performed. Results Three themes were identified: emotional well‐being due to peer and family support, emotional sense of togetherness despite hardships and emotional and ethical considerations in caregiving. Conclusion Support group participation with positive peer interaction increases carer self‐esteem and feelings of togetherness, and an awareness of maintaining the care receiver`s dignity and prevention of conflicts with families, resulting in an improvement in carer well‐being, leading to increased motivation to continue caring. Carers who hid their group participation face a potential conflict with the care receiver. Impact By sharing positive experiences, carers have increased self‐esteem and feelings of togetherness, which can have a positive impact on their motivation to continue caring. Positive peer interaction encouraged a shift in focus from negative to positive experiences, resulting in an improvement in carer well‐being. Joint group participation prevented conflicts in families. To protect the care receivers, carers kept support group participation a secret. Healthcare professionals could improve carer well‐being by focusing on positive caring experiences in support groups.