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伙伴在满足青少年和青年癌症患者的支持需求方面的经验和作用
Author(s) -
Davies Jane
Publication year - 2019
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.13944
Subject(s) - narrative , psychology , exploratory research , qualitative research , set (abstract data type) , identification (biology) , medicine , sociology , social science , philosophy , linguistics , anthropology , computer science , programming language , botany , biology
Aim To explore the experiences and needs of partners who are supporting adolescents and young adults with cancer. The diagnosis of cancer at any age is significant. Uniquely, in adolescents and young adults this is set against the backdrop of early adult development. This is at a time when young people may be embarking on new experiences and the development of romantic relationships is no exception. There is limited evidence of how partners cope during this time and what their role is alongside how the relationship may change over time. Design An exploratory qualitative study using narrative enquiry. Methods The protocol was approved in February 2018 and data will be collected between May – December 2018. The theoretical approach will incorporate positioning theory by considering the contextual situation of the partner with reference to their stories, including their rights and duties. Two interviews will be undertaken which will be approximately 2 months apart, where participants will be asked to share their stories. They will also be given a diary at the end of the first interview to record their thoughts about their role and relationship. The diary and interview data will be thematically analysed. Discussion It is envisaged that the study will culminate in the identification of key themes which will illuminate the experiences, needs and roles of partners of adolescents and young adults with cancer. Impact These findings will inform the development of guidance which will help partners in the future in this area of practice.