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向成人保健服务转变时,生命有限和生命受到威胁的儿童所经历的现实冲突
Author(s) -
Noyes Jane,
Pritchard Shan,
Pritchard Aaron,
Bennett Virginia,
Rees Sally
Publication year - 2018
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.13811
Subject(s) - qualitative research , psychological intervention , medicine , psychology , peer support , quality of life (healthcare) , life course approach , nursing , developmental psychology , sociology , social science
Aims The aim of this study was to report a secondary qualitative analysis exploring the cultural and practical differences that young people and parents experience when transitioning from children's to adult services. Background Despite two decades of research and quality improvement initiatives, young people with life‐limiting and life‐threatening conditions still find transition unsatisfactory. Design Secondary analysis: 77 qualitative interviews with children and young people (20), parents (35), siblings (1), professionals (21). Methods Qualitative framework analysis completed 2017. Findings Six conflicting realities were identified: Planning to live and planning to die with different illness trajectories that misaligned with adult service models; being treated as an adult and the oldest “patient” in children's services compared with being treated as a child and the youngest “patient” in adult services; being a “child” in a child's body in children's services compared with being a “child” in an adult's body in adult services for those with learning impairments; being treated by experienced children's professionals within specialist children's services compared with being treated by relatively inexperienced professionals within generalist adult services; being relatively one of many with the condition in children's services to being one of very few with the condition in adult services; meeting the same eligibility criteria in children's services but not adult services. Conclusion Inequity and skills deficits can be addressed through targeted interventions. Expanding age‐specific transition services, use of peer‐to‐peer social media, and greater joint facilitation of social support groups between health services and not‐for‐profit organizations may help mitigate age dilution and social isolation in adult services.