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Core elements to understand and improve coping with Parkinson's disease in patients and family carers: A focus group study
Author(s) -
NavartaSánchez M. Victoria,
Caparrós Neus,
Riverol Fernández Mario,
Díaz De Cerio Ayesa Sara,
Ursúa Sesma M. Eugenia,
Portillo Mari Carmen
Publication year - 2017
Publication title -
journal of advanced nursing
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.948
H-Index - 155
eISSN - 1365-2648
pISSN - 0309-2402
DOI - 10.1111/jan.13335
Subject(s) - coping (psychology) , psychosocial , focus group , parkinson's disease , disease , qualitative research , medicine , psychology , health care , clinical psychology , nursing , psychiatry , social science , pathology , marketing , sociology , economics , business , economic growth
Aims The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease. Background Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills. Design A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented. Methods Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease ( n = 9), one of family carers ( n = 7) and one of healthcare professionals ( n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers. Findings The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed. Conclusion Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long‐term conditions.