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EXPLORING THE INFORMATION PRACTICES OF PEOPLE WITH END‐STAGE KIDNEY DISEASE
Author(s) -
Bonner Ann,
Lloyd Annemaree
Publication year - 2012
Publication title -
journal of renal care
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.381
H-Index - 27
eISSN - 1755-6686
pISSN - 1755-6678
DOI - 10.1111/j.1755-6686.2012.00258.x
Subject(s) - medicine , thematic analysis , end stage kidney disease , end stage renal disease , nephrology , information needs , nursing , dialysis , exploratory research , kidney disease , medical education , qualitative research , disease , sociology , library science , social science , computer science , anthropology
SUMMARY This small exploratory study sought to understand how people with End‐Stage Kidney Disease (ESKD) experience the information environment and what information practices they employ in order to inform the decisions they make in relation to treatment and care. Using a constructivist methodology, in‐depth interviews were conducted with five people who were receiving haemodialysis in two small satellite dialysis units located in regional and rural communities in New South Wales, Australia. Thematic analysis revealed two types of patients. The first type appears to adopt a received view of information, who do not question their condition; and passively accept information. In the other type, patients were found to be engaged; they actively identified their information needs and quickly learned what that they needed to ask and who to ask. Knowing the information practices of people with ESKD is useful for nephrology nurses when providing patient education.