Premium
Methods used to measure patient perceptions
Author(s) -
RUBIN GS
Publication year - 2013
Publication title -
acta ophthalmologica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.534
H-Index - 87
eISSN - 1755-3768
pISSN - 1755-375X
DOI - 10.1111/j.1755-3768.2013.3422.x
Subject(s) - rasch model , popularity , patient reported outcome , quality of life (healthcare) , glaucoma , psychology , medicine , perception , item response theory , applied psychology , psychometrics , physical therapy , clinical psychology , social psychology , ophthalmology , developmental psychology , nursing , neuroscience
Abstract The number and popularity of patient‐reported outcome measures (PROMs) have increased dramatically over the past two decades. At last count there were over 100 vision‐specific PROMs covering all of the major eye diseases, including glaucoma. In this paper we discuss some of the main issues faced by developers and users of PROMs in glaucoma. Glaucoma‐specific PROMs have been developed for many levels of patient assessment ranging from multifactorial “quality of life” questionnaires (e.g. the Glau‐QoL and GQL‐15) to the more specific symptom scales (GSS) . The standard validation procedure for PROMs ensures that questionnaire scores are in fairly good agreement with measured performance of everyday visual tasks, at least for PROMs that are designed to measure activity limitation or functional ability. But they don’t always agree, and we will illustrate how this disagreement may be informative and help identify patients who are at risk for functional decline. Finally, we will explore how modern questionnaire design, especially Rasch analysis, has changed the way we think about questionnaire scores and the implications of these changes for improving the content (item banks) and efficiency (computer adaptive testing) of future PROMs.