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Comparison of perceptions of oral health‐related quality of life in adolescents affected with ectodermal dysplasias relative to caregivers
Author(s) -
Kohli Richie,
Levy Steven,
Kummet Colleen M.,
Dawson Deborah V.,
Stanford Clark M.
Publication year - 2011
Publication title -
special care in dentistry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.328
H-Index - 41
eISSN - 1754-4505
pISSN - 0275-1879
DOI - 10.1111/j.1754-4505.2011.00189.x
Subject(s) - medicine , quality of life (healthcare) , perception , oral health , clinical psychology , gerontology , family medicine , psychology , nursing , neuroscience
The objective of this study was to assess the perceived oral health‐related quality of life (OHQoL) of adolescents affected with one of the ectodermal dysplasias (EDs). Data were collected from 2003 to 2007 in a cross‐sectional study of a convenience sample of individuals affected by ED (n = 35) using the Child Perceptions Questionnaire (CPQ11–14) for children and the Parent‐Caregiver Perceptions Questionnaire for their caregivers. The main findings of this study were that individuals who were affected with ED in the older age group (15‐ to 19‐year‐olds) perceived more functional problems than younger individuals (11‐ to 14‐year‐olds) ( p = .04). Females with ED (n = 13) perceived more emotional problems than males (n = 22; p = .01). Although caregivers tended to report slightly higher OHQoL scores (indicating worse OHQoL), no significant differences were observed between children’s and parents’ total OHQoL and individual domains’ median scores ( p > .05). Thus, the perceptions of oral health and well‐being may vary by age and gender for children who have ED. Caution is warranted concerning using parents as proxies for their children when assessing the child’s OHQoL.