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Development of Databases and Registries: International Issues
Author(s) -
WHITEHEAD JAMES M.,
PATTERSON AMY P.,
MOULTON AUSTINE
Publication year - 1998
Publication title -
annals of the new york academy of sciences
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.712
H-Index - 248
eISSN - 1749-6632
pISSN - 0077-8923
DOI - 10.1111/j.1749-6632.1998.tb09140.x
Subject(s) - harmonization , standardization , international standardization , scale (ratio) , function (biology) , database , service (business) , data collection , business , computer science , geography , marketing , statistics , physics , cartography , mathematics , evolutionary biology , acoustics , biology , operating system
This paper describes the U.S. Public Health Service (PHS) efforts to develop a National Xenotransplantation Registry (NXR). The function of the registry is discussed, paying particular attention to data collection and harmonization issues. The need for standardization and coordination on an international scale is presented and the benefits of such efforts are discussed. Finally, a recommendation for an international effort aimed at harmonization is made.