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The Role of a National Organization in the AIDS Issue
Author(s) -
Carman C J
Publication year - 1984
Publication title -
scandinavian journal of haematology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.904
H-Index - 84
eISSN - 1600-0609
pISSN - 0036-553X
DOI - 10.1111/j.1600-0609.1984.tb02602.x
Subject(s) - government (linguistics) , variety (cybernetics) , public relations , key (lock) , foundation (evidence) , medicine , family medicine , political science , computer science , law , computer security , philosophy , linguistics , artificial intelligence
A national hemophilia society can play key roles in addressing issues concerning AIDS. The National Hemophilia Foundation (NHF), U.S.A., has put together an organization which enables it to interface quickly and with a consistent message to a variety of groups concerned with AIDS. Issues addressed included recommendations to patients, families, treaters, and the blood and plasma fractionation industry. In addition, the NHF served as a source of consistent information for the news media and for government agencies. This paper describes the organization and administrative procedures used to ensure a national voice representing the best interest of those affected by hemophilia during this period of concern over AIDS. The NHF model relied heavily upon its national medical and scientific resources. This assured that NHF constituents were being represented by a broad view rather than by a narrow view.