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Health‐related quality of life in narcolepsy
Author(s) -
Ervik S.,
Abdelnoor M.,
Heier M.S.,
Ramberg M.,
Strand G.
Publication year - 2006
Publication title -
acta neurologica scandinavica
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.967
H-Index - 95
eISSN - 1600-0404
pISSN - 0001-6314
DOI - 10.1111/j.1600-0404.2006.00594.x
Subject(s) - narcolepsy , norwegian , quality of life (healthcare) , vitality , medicine , population , social function , psychiatry , neurology , environmental health , social science , linguistics , philosophy , nursing , theology , sociology
Objectives – To describe health‐related quality of life in Norwegian patients with narcolepsy compared with data from the general population. Patients and methods – Seventy‐seven patients with narcolepsy with cataplexy were included in the final analysis. Health‐related quality of life was assessed by SF‐36 questionnaire. Results – Men and women with narcolepsy had lower scores in all SF‐36 domains, except vitality. Most profoundly affected were bodily pain (men: p = 0.0001, women: p = 0.0001), social function (men: p = 0.0001, women: p = 0.0001) and general health (men p = 0.04, women: p = 0.0001). Conclusions – Narcolepsy has a clear negative effect on quality of life which is not sufficiently counteracted by medical treatment. We suggest that earlier diagnosis and treatment after onset of symptoms may be important in reducing the negative effects on quality of life. Special attention should be paid to the patients social functioning and general well‐being.